Tuesday, March 30, 2010

Asperger's, Manners and A Mother's Worry

I'm currently reading the book "The Way I See It." by Temple Grandin. In it she discusses some of the day to day issues of raising a child on the Autism spectrum. One topic particularly caught my attention, it was on manners.

With all our children (I have three), we have done our best to teach them good manners and model them as well. As my son entered his threes and was diagnosed, we never saw that as a reason to excuse him from a bad behavior. It has often meant more patience, more redirection (especially, being creative as to how we redirected him) and more repetition of the behavior we expect.

Recently, my son had what can only be described as a very bad day at school. During class (this told to us by his teacher), he was feeling frustrated and in turn, this was making him lose focus. The teacher told us, that he took him out to the hall where they could talk privately and give Jonah a chance to regroup/refocus/calm down.

However, my son was already in such a state, that this gentle redirection didn't work and he wound up yelling at his teacher. Thankfully, he has a wonderful teacher and instead of being REACTIVE he was PROACTIVE. When he told us what happened, he stated he did not send Jonah to the office as is normally the case. The teacher saw how upset my son was in regards to his outburst and how out of character this was for Jonah. Instead, the teacher chose to work with directly with us, in how we handled the incident. Note that - he worked WITH us, he listened and followed our wishes. I am so very grateful for this.

So...how did we handle it? Consequences. We have always been firm, that both good and bad actions have consequences. Some you might like and some you won't. The first step was a face to face apology to the teacher, stating what he did wrong, why it was wrong and how he would endeavor not to do this again. The second step was a letter of apology, expanding on his verbal apology. Lastly, his privileges at home, for a week were determined by how he did each day at school. The teacher would let us know in his agenda, how the day went and from there he either earned or was denied use of the tv/computer/DS.

I've been working on this post for almost two weeks now...it is hard for me, when our son has moments like this, to put feelings into words. It touches upon deep-seated worries and fears for him and his future...and yet, who knows what the future will bring? Each day we do our best as parents, educators and as people on the spectrum.

We hope its enough, we pray its enough and watch with worried eyes as our loved ones navigate the neuro-typical world.

We are hyper aware of how others perceive our children. Each small act of kindness, understanding is treasured and stored away in memory.

We ask for patience, awareness and friendship.

We don't ask for pity.

Lastly, I leave you with an excerpt of an MSNBC interview with Temple Grandin, on the topic of the importance of manners for children on the spectrum. I encourage you to read her books, as they are wonderful source of information and inspiration.












Temple Grandin: "The other thing is, teach these kids manners. I was raised in the ‘50s and ‘60s, and manners were drilled into me. I see kids [on the spectrum] today that have no manners. That’s going to hurt them. You can’t punish a child who is acting out because of sensory overload. But it’s unacceptable to see kids throwing things and slapping people. I see kids with Asperger’s [a mild form of autism] who can’t hold a job because they are constantly late. Teach kids to use an alarm clock. This is common sense and sometimes we forget about common sense. Autism is used too much as an excuse for bad behavior."

http://www.msnbc.msn.com/id/35150832/ns/health-mental_health/

5 comments:

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  2. With all due respect to Dr. Grandin, I think it is unfair to single out parents of children with autism.

    My observation is that children born after about 1995 are more likely to think that their own interests should come first; a a lack of sense of self-regulation (I want what I want and it should be given to be NOW); a sense that less-than-immediate gratification a cause for complaint; a general sense of no difference in status between adults and any random child ...of course I'm exaggerating.

    But I'll leave you with a vignette from February, 2010. The setting is a ski resort, which offers a combination ski-school/child care arrangement ("kinder-ski"). They start with a little indoor play, before going out. I'd stopped by to visit with a friend who was involved with the program, because I wanted to see what she'd told me about the systems they used to keep the kids in the program engaged and on track (picture schedules, count-down timers, lots of transition preparation, and so on.

    A girl, who appeared to be in about kindergarten or first grade had been placed in the program. It was time for the 7 or 8 children to put on their outerwear (parkas and gloves and so on). Near the end of all the preparation-for-transition, one little girl glanced up at my friend, looked her straight in the eye, and said, "I'm not finished with my game! We'll go when I'm done! And then she turned back what she was playing with. My friend crouched down and repeated the request. Without looking at my friend, the girl whipped a cell phone out of her pocket, flipped it open, speed-dialed, and when her mother picked up, whined, "Mommy! I'm not finished with my game and they're trying to make me stop!"

    I decided to leave just then because...well, I didn't want to see what happened next.

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  4. I agree. I think in regards to Grandin's comments, she was referring only to children on the spectrum. In today's world, any child who is not neuro-typical, is especially vulnerable to the issues permissiveness, entitlement and that a no consequences world would incur. That said, here at home, we have tried our best to apply the same expectations to our other children as we do to Jonah. The only difference in his case, is it takes a bit longer to instill that value/ethical/moral guideline.

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  5. I agree with Temple Grandin's advice on manners. It never occurred to us not to teach our autistic son - or our nonautistic son - manners. Like she says, it's just common sense.

    The message also needs to get out to parents of nonautistic kids. Talk about a group with no concept of manners....

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